Privacy Policy

Stuttering Society




1.1 Stuttering Society aims to support people who stutter in different aspects of their lives by enabling them to share personal experiences and ideas related to stuttering, get career advice from HR experts and get support from peers by means of the online Stuttering Society platform on (“Platform”).

1.2 You can use the Platform as a guest (“Guest”) without creating an account or profile. If you would like to use the Platform as a registered member (“Member”) you need to provide additional Personal Data to create an account and profile on the Platform.

1.3 Stuttering Society is data Controller when processing your personal data which it receives when you share your personal data or those of someone else with Stuttering Society f.e. through the Website, Platform, by e-mail or personal contact.

1.4 This Privacy Policy describes the types of Personal Data that Stuttering Society can process, for which purpose, and on which legal grounds.

  • This Privacy Policy does not apply to Personal Data collected through any other means, including a third party or through any application or content (including advertising) that may link to or be accessible from (“Website”) and for which Stuttering Society is a data Processor.
  • Stuttering Society is committed to protecting your privacy with regard to the Processing of Personal Data, the EU General Data Protection Regulation 2016/679 of 27 April 2016 (“GDPR”) and all other applicable regulations on the protection of privacy and the processing of personal data, by which this Privacy Policy is governed (together referred to as “Privacy Legislation”).
  • This Privacy Policy is offered to you electronically and is always accessible under the header “Privacy Policy” on the Website. Please read this Privacy Policy carefully. If you are a Website user and any term in this Privacy Policy is unacceptable to you, please do not use the Website.
  • This Privacy Policy can be amended by Stuttering Society at any time. Therefore, you are advised to consult it regularly. The amended Privacy Policy will be published on the Website and enter into force on that date.


2.1. Stuttering Society is the data controller of your Personal Data for the Purposes defined below under Item 4, in accordance with the provisions of the Privacy Legislation and this Privacy Policy

2.2. Stuttering Society is a controller only for the processing activities for which it determines the purposes and the means. If you decide to follow us on social media through the icons on our website, Stuttering Society and the social network may jointly determine the means (and purposes) of the processing necessary to do so. Stuttering Society is not responsible for any further or subsequent processing by the social networks.

Stuttering Society has a page on the following social networks:


We have added the link to their respective privacy policies. For the processing for which Stuttering Society and the social network jointly determine the means and purposes, you can exercise your rights mentioned below (Article 7) both at Stuttering Society and the social media network.

2.3. Questions, comments, and requests regarding this Privacy Policy may be addressed to the following e-mail address:


3.1. We can process several types of Personal Data from and about (i) Guests; and (ii) Members.

3.2. The Personal Data more particularly may concern:

  • Identity Data such as your first name, surname, username or similar identifier, country and city, date of birth and gender.
  • Contact Data such as your email address.
  • Technical Data such as the Internet protocol (“IP”) address, your login data, browser type and version, information collected through cookies, time zone setting and location, browser plug-in types and versions, operating system and platform and other technology on the devices you use to access the Website. You can find more information on the use of cookies in the cookie policy on the Website.
  • Profile Data such as your city, country, date of birth, interests, preferences, and feedback
  • Usage Data includes information about how you use our website.
  • Health data such as the information concerning speech disorders when you choose to share this information on the Platform on a voluntary basis. Do not post or add Personal Data on/to the Platform that you would not want to be publicly available.
  • Membership/Log-in: For users that register on our website, we store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information. Some areas of the Stuttering Society’s Web site are restricted to those visitors who provide us with some additional personal information by submitting an online registration form, who then must log-in by providing their unique username and password. This personal data is also processed by Stuttering Society.
  • Personal data processed through social media (e.g., personal data processed through social media plug-ins embedded on the Platform).

3.3. Stuttering Society will not process Personal Data when processing is prohibited under the applicable Privacy Legislation.

3.4. In any case, no Personal Data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, or trade union membership, and the processing of genetic data, biometric data for the purpose of uniquely identifying a natural person, data concerning mental health or data concerning a natural person’s sex life or sexual orientation will be processed by Stuttering Society unless this has been voluntarily shared by you.


4.1. Stuttering Society processes your Personal Data in accordance with the applicable Privacy Legislation and this Privacy Policy for limited, explicit and legitimate purposes.

4.2. Stuttering Society will not use Personal Data for any purpose that is incompatible with the purpose for which it was initially requested or collected unless you provide your prior explicit consent for further processing.

4.3. Stuttering Society processes your Personal Data for the following Purposes on the corresponding Legal Basis:

Purpose Legal Basis
Perform its activities as described in Item 1.1by offering you access to use the Website and Platform along with all its functionalities Consent*; Contract** Legitimate interests
Managing accounts of Members/Guests Consent; Contract; Legitimate interests.
Optimize our range of services and offer or deliver services and to inform you about this Consent; Contract; Legitimate interests: Client management.
Understand your needs and preferences so that Stuttering Society and/or our partners can better tailor our offers, services or methods hereto Consent; Contract; Legitimate interests: Client management.
Administering the Website and the Platform (e.g., including troubleshooting, data analysis, testing, system maintenance, support, reporting and hosting of data) Legitimate interests in ensuring proper functioning of our Website and the Platform.
Activities of subcontractors and contract parties of Stuttering Society for enabling its activities and execution of the previous items (f.e. giving IT support) Consent; Contract; Legitimate interests in developing and enhancing the services offered via the Platform.
When required to comply with any provisions in any applicable laws and regulations or follow any governmental notification Legal obligation.
Benefit from social media related analytics Consent; Legitimate interests in developing and enhancing the services offered via the Platform.
Selling a product to users and/or visitors on the platform Contract.

*The voluntary, specific, informed and unambiguous consent given by you or in your name for the concerned person to Stuttering Society, its partners (f.e. subcontractors or contract parties) to process the Personal Data. You can give your consent by any means, such as but not limited to: by letter, e-mail, online or offline consent form, link or registration, or orally.

** An agreement which you entered into with Stuttering Society on the access to and/or the use of the Website and Platform and/or the information thereon and the relating services.

4.4. For questions or additional information regarding the purpose and legal basis for processing personal data, please contact Stuttering Society at


5.1. Subject to any applicable laws and regulations, we disclose Personal Data that we collect or you provide as described in this Privacy Policy:

  • to other Members of the Platform with whom you make contact through the Platform;
  • to service providers and other third parties we contract with to support our Website and the Platform (e.g., web hosting, data analytics provider, web designer, a developer, etc.) in the legitimate interest of Stuttering Society;
  • to governmental agencies when required by law;
  • Social media network providers (e.g., Facebook);
  • if we are under a legal duty to disclose or share your Personal Data in order to comply with any legal obligation;
  • to protect the rights, property, or safety of Stuttering Society.

5.2. The third parties to which Stuttering Society on the basis of abovementioned categories is entitled or obliged to transfer Personal Data, are established within or outside the European Union. The obtained Personal Data can thus also be transferred to companies or institutions in non-EU countries. In the framework of transferring Personal Data, Stuttering Society is not responsible and cannot be held accountable for the further processing of the Personal Data by third parties, other than the processors for Stuttering Society.


6.1. We will not retain your Personal Data longer than allowed under the applicable Privacy Legislation. In any case, we will not retain it longer than necessary to achieve the Purpose as described in Item 4for which it was requested, collected or otherwise processed, subject to applicable local retention requirements.


7.1. You may at any time exercise certain rights you may have under applicable law and regulation.

7.2. Under the GDPR, you may benefit from the rights listed in this section. These rights can be exercised by you at any time by contacting Stuttering Society at

7.2.1. Right to access

You are entitled to obtain confirmation from Stuttering Society as to whether or not any Personal Data concerning you is processed by Stuttering Society.

In the affirmative, you have the right to access such personal data, to obtain a copy of it free of charge (except for repetitive or excessive requests) and to be provided with the following information:

(i) purposes of such processing, (ii) categories of personal data concerned, (iii) recipients or categories of recipients of personal data, in particular recipients in third countries outside the EU, (iv) the envisaged retention period or, if not possible, the criteria used to determine it, (v) existence of the right to request rectification or deletion of personal data, as well as the right to object to or request restriction of processing, (vi) the right to lodge a complaint with a supervisory authority, (vii) information relating to any third party source of personal data if the data were not collected from you, and (viii) the existence, the logic involved, the significance and the consequences of any automated decisions, including profiling.

7.2.2. Right to rectification

You have the right to obtain without undue delay the rectification of inaccurate, incomplete or outdated Personal Data concerning you.

7.2.3. Right to deletion (‘right to be forgotten’)You have the right to obtain without undue delay the deletion of your Personal Data in one of the following cases:

  • the Personal Data are no longer necessary in relation to the Purpose(s) for which it was requested, collected or otherwise processed;
  • you withdraw the consent on which the processing was based, and there are no other legal grounds for the processing;
  • you object to the processing, as provided in the “Right to object” section below;
  • your Personal Data has been unlawfully processed;
  • your Personal Data has to be erased for compliance with a legal obligation in EU or EU Member State law.

However, Stuttering Society may refuse the deletion of personal data if the processing of such data is necessary for (i) exercising an overriding right of freedom of expression and information, (ii) compliance with a legal obligation which requires processing by EU or EU Member State law or for the performance of a task carried out in the public interest, (iii) overriding reasons of public interest in the area of public health, scientific or historical research purposes or statistical purposes, or (iv) establishment, exercise or defense of legal claims.

7.2.4.   Right to restriction

You have the right to obtain restriction of processing in the following cases:

  • where you claim inaccuracy of your personal data processed by us (the restriction being provided for a period enabling Stuttering Society to verify the accuracy);
  • where the processing appears unlawful, and you oppose the deletion and request the restriction of use of your personal data instead;
  • where Stuttering Society does not need your personal data for the purposes of processing, but the personal data is required by you for the establishment, exercise or defense of legal claims; and
  • where an objection is raised by you in relation to the processing, pending the verification whether the legitimate grounds of Stuttering Society override those of you.

When you have requested a restriction of processing your Personal Data, you will be informed prior to executing such restriction.

7.2.5.   Right to object

As a general rule, you have the right to object, at any time and on legitimate grounds relating to your particular situation, to the processing of your Personal Data. Provided that such objection is justified, Stuttering Society will no longer process the personal data concerned unless we can demonstrate compelling legitimate grounds for the processing which override your interests.

You can at all times and freely of charge object to the processing of your Personal Data for direct marketing purposes. This implies amongst other things that one can always unsubscribe from newsletters, commercial or promotional mailings or personalized ads so that Stuttering Society can no longer send those.

7.2.6.  Right to data portability

However, Stuttering Society can refuse such request if the processing concerned is necessary for the performance of a task carried out in the public interest or if responding to such request risks to adversely affect the rights and freedoms of others.

7.2.7.  Right to withdraw consent

Where the processing of your Personal Data is based on consent, you have the right to withdraw such consent at any time without affecting the lawfulness of processing based on consent before its withdrawal. You can withdraw your consent by any means, such as but not limited to: by letter, e-mail, or orally.

7.2.8.  Right to lodge a complaint

You also have the right to lodge a complaint with the Data Protection Authority (“Commission for the Protection of Privacy” or “Privacy Commission”) in case you believe that the processing of your Personal Data is contrary to the Privacy legislation.


8.1. In principle, your Personal Data are stored with Stuttering Society or its ICT-provider, unless otherwise mentioned in the conditions of the ICT-provider, which can be provided by Stuttering Society upon request.

8.2. The Personal data provided by you through the Website and Platform will not be stored on the internet, but can be stored on the servers of the Website.

8.3. Stuttering Society commits to the best of its ability to (have) take(n) all reasonable measures to ensure the protection of Personal Data against loss, destruction, alteration or unauthorized access via technical safety regulations and an adequate security policy. Personal data provided to us through the Platform will be encrypted.

8.4. You acknowledge and accept that the forwarding and storage of Personal Data is never without risk and therefore that the damage that you or the person concerned would suffer due to unauthorized use of Personal Data by third parties can never be recovered from Stuttering Society.

8.5. If you are aware that a data breach has occurred, you must notify Stuttering Society of this immediately by e-mail at


9.1. Our website may contain links or references to other websites outside of our control. Please be aware that this Privacy Policy does not apply to these websites.

9.2. Stuttering Society encourages you to read the privacy statements and terms and conditions of linked or referenced websites you enter. These third-party websites may send their own cookies and other tracking devices to you, log your IP address, and otherwise collect data or solicit personal data.

9.3. Stuttering Society may share members and guest stories on its social media channels, including Facebook, YouTube, Twitter and Instagram, if you have given your consent.


10.1. Our Website is not intended for children under 16 years of age, and the Stuttering Society does not knowingly collect or use any personal data from children under the age of 16. No one under the age of 16 may provide any information to or on the Website. If we learn we have collected or received personal data from a child under the age of 16, we will delete that information. If you believe we might have any information from or about a child under the age of 16, please contact the Stuttering Society at


11.1.  We reserve the right to change this Privacy Policy at any time. Any changes we make will be posted on this page. If we make material changes to how we treat your personal data, we will notify you through the Website home page via a separate banner. The date this Privacy Policy was last revised is identified at the top of the page. You are responsible for ensuring that we have a deliverable e-mail address for you, and for periodically monitoring and reviewing any updates to this Privacy Policy. Your continued use of our website after such amendments will be deemed your acknowledgement of these changes to this Privacy Policy.


12.1. If a provision in this Privacy Policy is deemed to be unlawful or non-enforceable, this clause will be amended as far as necessary to render this clause lawful or enforceable, whereby the original meaning of the provision will be preserved as much as possible.

12.2. Where possible, the provisions of the Privacy Policy will be interpreted in such a way that they are valid and enforceable under the applicable law. However, if one or more provisions of this Privacy Policy appear to be entirely or partially invalid, unlawful or non-enforceable, the rest of that provision and the privacy statement will remain in force nonetheless, as if this invalid or non-enforceable provision had never been adopted.

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